Eden is legally protected at school by what is called a “504 plan” (more info here) which covers children with disabilities. I myself do not consider T1D currently as a disability – but if it protects my childs’ right to a fair education and her life whilst at school then I am all for it.
Eden has a Student Accommodation 504 plan in conjunction with her Medical Management Plan which are in place and specific to her particular needs in relation to Type 1 Diabetes.
T1D is a SERIOUS condition that can be life-threatening and as such we must have provisions in place to ensure she is safe when she is at school.
We have been incredibly lucky that her school has been very accommodating in our requests and has never gone against our 504 plan – which is a LEGAL document and must be adhered to. I have seen time and time again where parents are struggling because their schools / teachers do not understand the seriousness and repeatedly go against a 504 putting a life at risk as well as future learning capabilities of a child.
I believe this is where education comes in and why I fight so hard every day to help educate and spread awareness. If teachers do not fully understand T1D or are not willing to learn about T1D these problems will continue.
2 of Eden’s accommodations specifically related to her education are the following:
Type 1 Diabetes affects mood when blood sugar levels are out of whack but they also severely affect Eden’s ability to concentrate and focus. The ability to adsorb information is sometimes completely out of her control and it can sometimes affect her school work and/or testing capabilities. If results are out of the norm and her teacher deems appropriate – Eden is able to re-take tests if blood sugar levels are thought to be an issue.
Eden’s medical needs are also to be accommodated for field trips (so she does not miss out on the opportunity) and require a trained staff member (nurse) to attend. As the school district has only a handful of nurses to go around I have always instead volunteered to attend field trips with Eden. I have to admit – the first time she went on a field trip (I followed the bus in my car) and I lost sight of the bus I almost had a panic attack.
Today, we head off on another school field trip together – I will try to pretend I’m not there and give her the freedom she deserves with her friends 🙂