I have said before that I wouldn’t wish Type 1 Diabetes on my worst enemy – not that I have any 😉
T1D is such a wild ride of emotions – it is very difficult having your child live with an incurable disease that affects every single aspect of their life whilst awake and asleep.
I myself do not live with the disease and the physical feelings that Eden feels – but I DO live with the emotional and physical burden that the disease causes. The feelings of worry, helplessness, guilt, exhaustion and frustration that follow me around on a daily basis. The huge task of ensuring that your precious child sees another day healthy and happy by doing everything in your power to try to wrangle a disease that is sometimes impossible to wrangle.
BUT – aside from all the negative aspects Type 1 Diabetes brings to our lives – it also brings OPPORTUNITY.
An opportunity to educate the public – educate ourselves and be thankful for the wonderful life that we DO have.
- You learn about the incredible strength and resilience of your child
- You learn who your true friends are – those who duck for cover or run to learn with you
- You learn how to grasp your inner strength when you are running on empty
- You learn to survive and function on little sleep
- You learn that things could be much, much worse and that you are OK.
My Blog is an outlet for me – to share our life – good and bad whilst we are living with this disease. It may not always be pretty – but it is our TRUTH.
We do not want people to look at us differently because they now know our struggles – once hidden behind closed doors.
We DO NOT want pity – because we can and will live a full and happy life despite this life-changing diagnosis.
We DO WANT understanding – not just for us but for the entire Diabetes community. Understanding that there is NO easy fix for this disease. It is non-stop 24 hours a day 7 days a week 365 days a year. Insulin keeps Eden alive but it is NOT A CURE and she will continue to live this tightrope walk daily until there IS a cure.
Type 1 Diabetes is misunderstood and I want to help the public learn through us from OUR story.
end of story – no ulterior motive – just the brutal honest truth.