As Eden’s “diaversary” approaches it makes me think back to the day almost 4 years ago when Eden was diagnosed with Type 1 Diabetes and we were thrust into a world of unknowns..
Even though I took Eden to the ER asking for her to be tested for T1D – I had NO IDEA what that meant or what our life would entail. Even when the blood glucose meter read “HI” – I still had no idea what that meant..
Thankfully I did know the symptoms so Eden was not at death’s door upon diagnosis, but other than that I was completely clueless!
Whilst Eden was in the hospital we were bombarded with SO MUCH information in those first couple of days I thought my head was going to explode. It was a HUGE learning curve and one we needed to learn FAST to care for our child and keep her alive.
Insulin – long acting and short acting
Blood Sugar readings
Every single thing we learned about was daunting …
I have to INJECT MY CHILD with insulin ??? EVERY DAY – multiple times a day ?!
What were all these things ?? And WHY were they all SO SCARY ..
We were sent home with a 300 page book on understanding Type 1 Diabetes – mountains of life-sustaining supplies and a broken heart.
We learned a new way of life that day – learned a new language that we now speak every day and it seems second nature. It took a LONG time to get comfortable with caring for Eden but we can never get too comfortable – or complacent.
- I will never forget the first time I had to draw insulin up out of the vial, measure a tiny dose and inject it into my daughter – my hands had never shaken so much.
- I will ever forget the nights watching her sleep and sobbing by her bed – scared to death to leave her side
- I will never forget the times we had to physically hold her down to test her blood sugar, give her a shot or force feed her sugar with her screaming and flailing
I will never forget these moments –
we have learned to live with them and thrive through this diagnosis but those memories will never fade.
Type One kids are amazing – as are their families and adults living with this disease
… It is a TOUGH TOUGH road to travel every day yet we do it because we have no other choice.