I cannot believe it has been almost a week since my last post…
My last report was SO positive and I was super excited.. unfortunately it didn’t last long.
Of course we should all know by now that those days of T1D elation are few and far between.
Type 1 Diabetes being Type 1 Diabetes – we have learned to expect the unexpected.
Celebrate when we can and move on – because we are chasing a moving target and no 2 days are the same.
There are 2 times of day in particular that we have been consistently struggling with keeping Eden’s blood sugars in check.
10am and 10pm
like clockwork – and actually being PREDICTABLE – her blood sugars seem to rise at these times.
without fail – no matter what we do.
- ONLY when she is at school – NOT on the weekends
- ONLY when she does not have basketball in the evenings – THOSE nights we fear a crash
It really felt like we were making progress – we were cutting it off before it started
We have had a few good days and then yesterday the time seemed to shift to 11am and it wasn’t a gradual rise – but a huge spike upwards
last night she had a crazy spike at 10.30pm and did not come down below 200 all night.
I changed her insulin pump site this morning but she has remained high ALL DAY TODAY..
yeah – 400’s HIGH
REALLY bad for you HIGH
Makes me squirm and want to scream HIGH
- I HATE to have to nag her all the time
- I HATE that I have to drill her on what she ate and when
- I HATE that she might feel the need to hide what she is actually eating
- I honestly DON’T WANT TO CARE if she took a juice or something else that she really shouldn’t have – but she REALLY needs to think about what she is eating when her blood sugars are SO HIGH
- I HATE that sometimes we need to say NO
- I HATE that when she is at school I don’t know why and I can’t find out why without questions
She thinks I’m just being a pain in her butt..
- I’m trying to find answers
- I’m trying to understand WHY so I can fix it
- I’m trying to help HER understand and CARE why it is so important
- I’m trying to get her to be more responsible
- I’m trying to have her body function to the best of it’s ability
- I’m trying to keep her out of the hospital and ALIVE