So lately D has been kicking my butt…
the emotional side as a D-mom is VERY difficult – much harder than I ever anticipated it would be.
Finding the balance between being a caring mother and letting your child find their wings and do their own thing is tough in the D world.
Type 1 Diabetes makes this balance incredibly complicated and hard.
It’s one thing to let things slide like a clean room, leaving stuff lying around the house and doing dishes or chores. If I didn’t pick and choose my battles every day – I would seriously BE battling every day.
Some things are much harder to ignore – or let slip
Like D management
Things you KNOW are detrimental to your child’s health and well being. Maybe not immediately – but most definitely long term if it goes on for a long period of time.
We have been having some struggles lately – not new struggles – but ones that come and go..
D management is a 24 hour a day thing – it NEVER takes a break..
If I feel like D is kicking my butt – I can’t even imagine how Eden feels – when she is trying to navigate the already difficult pre-teen world.
- SHE is the one who has to prick her finger a gazillion times
- SHE is the one who has to count carbs for every single little thing she eats
- SHE is the one who has to deal with the stares and being singled out
- SHE is the one who is attached to a medical device 24/7 to LIVE
- SHE is the one who lives with the stigma and the way D makes her body feel
Eden’s carefree blase attitude is a double edged sword.
She handles most D things like an absolute champ and rarely complains out loud. It appears as though she may be complaining silently with her actions and thus causing me to feel like I am banging my head against a brick wall some days.
Eden is 12 years old – but there is SO much to think about and manage with T1D. She wants to forget it exists and I honestly don’t blame her one bit. every child is different – every childs personality is different – every situation is different. There is no easy fix or one answer – there is trial and error – the need for compassion and understanding and a lot of crossed fingers.
Type 1 Diabetes is invisible.
Unless you look closely and see the scars and medical devices she has attached to her body.
It is going to be a tough and gradual process – trying to maintain my sanity whilst trying to encourage her to take control of her disease – something she is going to have to manage FOREVER – for the REST OF HER LIFE.
I’m sure to outsiders I look like a helicopter mom – a worry wart – a control freak.
Maybe sometimes I am? But maybe those people just don’t get it?
Something I never really anticipated with this diagnosis was feeling understood.. This disease can make you feel so alone and isolated – because as a whole Type 1 Diabetes is misunderstood. People just don’t understand how it takes its toll and how much work is involved in keeping Eden alive and healthy – every.single.day. – and of course the emotions and struggles that go along with it.
Today – I posted to a couple of Facebook groups to get feedback and advice from other parents. The DOC (diabetes online community) is amazing – literally, within minutes – I had a bunch of suggestions and virtual hugs on how to tackle the issues we are dealing with.
Facebook might now be more geared to the “old folk” as younger people have moved on to other forms of social media – but Facebook has saved my sanity and been my lifeline many times over.
thank you DOC – for the words of wisdom and continued support
We will keep battling because we have no choice.
Type 1 Diabetes is a tough adversary – but we will win – and it will not get the better of us.
Just need to convince Eden to want to go to battle against D as much as I want to.